Storm (Ohio)

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storm

Storm was born July 1992 after a very tough delivery he weighed 8.8 lbs. He was jaundice almost immediately I was told to put him is the window for some sunshine upon being dismissed from the hospital. I took him for his 10 day check up still jaundice and not back to his birth weight the doctor sent us for …

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Harris (Georgia)

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“Super Harris” was born 1-31-10. He ran a fever briefly after birth but seemed healthy. His labs caused red flags because his direct bilirubin was elevated and we stayed in the hospital for 10 days. We took a “wait and see” approach for a few weeks and ultimately ended up changing doctors (and cities) after a bad HIDA scan. With …

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Trey (Nebraska)

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trey

Trey was born December 12, 2005. He weighted 9.8 and appeared healthy. After a few days he turned yellow but that was nothing new to us. Both of Trey’s sisters, Emma 10 and Anna 8, were yellow and had the lights in the hospital. All of them went home after 4 days in the hospital and used the wallaby blanket …

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Zane (Kansas)

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Zane DOB -12/20/2004 Zane was born on a Monday evening. We were so glad to finally have him here. Zane has two older sisters, whom both love him dearly even when they’re mad at him. He was jaundiced like every newborn tends to be. At his one month check-up, he was still pretty jaundiced, but I really thought it was …

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Clarissa (Nebraska)

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clarissa

After having waited through 11 years of marriage before being able to have our first daughter, Elise; we were delightfully surprised to again be expecting another child. Clarissa was born the day after our anniversary, and I didn’t realize she was a Saint Patrick’s baby until they put a cute green knit hat on top her beautiful brown hair. Clarissa …

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Robin (Missouri)

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Robin was born 4 weeks early and came into this world not breathing. She was born with jaundice and put on the bili lights for 7 days. They checked her bili and said she would be fine. So as the months went on Robin was doing fine we thought. But. When I took Robin in for her 4 months shots, …

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Sameen Abid Family (Pakistan)

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Hi! My name is Sameen. My son got a liver transplant in 2006. He was diagnosed Wilson’s Disease, he is now 15 years old. He was only 10 when he got the liver transplant. He is doing good, but there are some problems with him. His bile ducts are so thin, so doctors have to put a plastic stent in …

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Joshua (St. Louis)

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Joshua was born Oct.29th 2002, he was jaundice almost straight away, we tried lights to bring down his bilirubin but it kept creeping up. After several stents in the hospital and numerous blood tests and different meds it was decided a Hydascan would be needed to see if he indeed had Biliary Atresia. The Hydascan revealed a missing GalBladder and …

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Noah (Florida)

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noah

Noah was born on December 22, 2009, at Lawnwood Regional Hospital in Ft. Pierce, Florida. When he was born he could not hold down his formula, we tried several. He had to sleep in the nursery because they wanted to watch the vomiting. The night before I took him home he vomited green bile. The pediatrician told me the next …

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Rachel (Nebraska)

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rachel

Rachel was 7-8 weeks old when her peditrician Dr. Vicki Herrman worried about her being too yellow and sent her to Childrens Hospital for tests. That was a Monday. Then she referred us immediately to Dr. Simon Horslen ..we saw him on Tuesday. He referred us to a pediatric surgeon Dr. Steven Raynor and we saw him on Wednesday. He …

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